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Prednisone tapering is challenging. What does remission feel like?

Polymyalgia Rheumatica (PMR) | Last Active: Sep 3, 2023 | Replies (209)
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@traynor4

I was diagnosed with PMR Feb. 4, put on 60 mg of Prednisone for 3 days, than down to 40 for 5 days, 30 for 6 days, than 25 for 2 weeks and now 20 for 2 weeeks. I have been on 20 mg now for 6 days (I have had some pain in neck, shoulders and hips in the mornings until the Prednisone kicks in) but I have been extremely tired the last couple days with weakness in legs. My question - is this due to the tapering or is it the PMR.. What are the symptoms when you taper? Thank you.

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Replies to "I was diagnosed with PMR Feb. 4, put on 60 mg of Prednisone for 3 days,..."
John, Volunteer Mentor | @johnbishop | Mar 10, 2022

Hello @traynor4, Welcome to Connect. You will notice that we merged your post with an existing discussion on the same topic so that you can meet @skiing @virginiaj @mzamyl @tsc and others and learn what they have shared about tapering down on prednisone.

I've had 2 occurrences of PMR but it's now currently in remission. Both times I was started on 20 mg prednisone. It seems like quite a high starting dose of prednisone for PMR which is normally 12.5 to 25 mg as the starting dose. Does your rheumatologist suspect you might have something other than PMR like Giant Cell Arteritis (GCA) which may require a higher starting dose?

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