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Crohn's disease - Question about Remicade (Infliximab)

Digestive Health | Last Active: May 18, 2024 | Replies (23)
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@bikerjack

Remicade complications
I have a very high level of Remicade in my system supratherapitic. I am having multiple symptoms like itchy rash, tingling in arms and legs on both sides, plus many others. Remicade is to treat my long-term Crohn's. I was on Remicade for awhile with no problems. Insurance switched me to a bio similar problems started. Switched back to Remicade and problems got worse. Anyone had a similar experience? Anyone with an idea to resolve the situation?

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Replies to "Remicade complications I have a very high level of Remicade in my system supratherapitic. I am..."
Becky, Volunteer Mentor | @becsbuddy | Mar 9, 2022

Hello @bikerjack I’m very sorry to hear about this drug reaction you’re having. I included a link to a remicaid site which lists the side effects. If you haven’t done so, you might want to mark those that you have so you can get a better picture.
https://www.rxlist.com/remicade-side-effects-drug-center.htm
What has your doctor said? Does he agree that you have a ‘supratherapeutic’ amount in your system? What is the plan until you get the excess remicaid out of your system?

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Colleen Young, Connect Director | @colleenyoung | Mar 9, 2022

Hi @bikerjack, I'd like to add my welcome as well as introduce you to @skolotilin @pinktower, @thankful @guener and others who have experience with Remicade and Crohn's disease. You'll notice that I moved your question to this discussion so you can read their past posts and connect with them easily.
- Crohn's disease - Question about Remicade (Infliximab) https://connect.mayoclinic.org/discussion/crohns-disease-2ed085/

Like @becsbuddy, I'd be interested to hear if your doctor is considering changing the supratherapeutic dosage.

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