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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
@windyshores My onco ordered the OncotypeDX. The hospital sent the tissue directly to Oncotype after the surgery in October. The Breast Cancer Index test would have been helpful too. I wish I'd known about the various tests earlier. Looking back to the diagnosis last fall...well I was in shock. No one in my family has had cancer other than father who died of prostate cancer the second time he got it. I was blindsided by the bad biopsy and only now realizing how much more I'll need to consider going forward in order to feel some confidence in a personal decision tree. I just keep adding to the list of questions I plan to ask the oncologist this week.
Replies to "@windyshores My onco ordered the OncotypeDX. The hospital sent the tissue directly to Oncotype after the..."
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The Oncotype and Mammaprint are used when pathology is first done after surgery. The Breast Cancer Index is for deciding on continuing meds for years 5-10. They told me studies only covered that period of time but that since it showed no benefit for me from AI's for those years, I could maybe assume the same was true for years 1-5. However, after writing you before, I think it might be hard to get the Breast Cancer Index at this stage for you. The Oncotype is standard of care and in all the guidelines. I felt comfortable relying on it. The company reps are very informative and reassuring.
If I were you, I would try the aromatase inhibitor (I did Femara) and work with oncologist and endocrinologist on monitoring and possibly treating your bones.
I am sorry if I complicated things for you. AI's are very tolerable or even without side effects for many of us and with your scenario I am sure they will be very helpful.