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Anyone else have a Redundant / Tortuous Colon?

Digestive Health | Last Active: 5 days ago | Replies (1026)

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@calannie

I had 4 colon surgeries in 2019 & 2020.(Was supposed to be 2, but they couldn't get the colon to heal back together. )Had 3 different colostomy sites, then an illeostomy. Two weeks ago wound up in the emergency room/hospital with severe abdomnal pain, though i had had a follow up colonoscopy 6 months before and my surgeon said I was healed. Now they say it was tortious--that I have so much scar tissue inside the intestines can get caught on the scar tissue and twist on itself and this will be an ongoing problem. Dr. said not really much that can be done to prevent it but when I asked about diet gave me a FODMAP handout that is not very comprehensive.
I had thyroid disease most of my life so not really familiar with constipation--usually moved my bowels 4-6 times a day all my life. After thyroidectomy I had occasional constipation but fixed with drinking coffee or V8, or eating spaghetti sauce. When they told me I was pre-diabetic I learned to control my blood sugar with diet.
Unfortunately, this FODMAP diet is contrary to sugar controlling diet. I did the "white elimination"--no white bread, potatoes or rice. Lots of high fiber whole grains. Now they want me to stop eating whole grains, nuts and seeds, salads, dried fruits, mushrooms, many vegetables I have eaten regularly. I'm in process of sorting out what I can and can't eat and how to cook. I stopped eating salt 50 years ago--don't use it except occasionally for sore throat gargle. Don't use sugar. Put agave in tea or coffee. Eliminated high fructose corn syrup about 15 years ago. They recommend pureeing most vegies--I LOATHE soft food--like my vegies raw or al dente. Allergic to fish and eggs. I usually only ate twice a day--now it says 6 small meals a day--this is WAY too much time spent thinking about food and my bowels. Looking for others dealing with this and how they do it?

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Replies to "I had 4 colon surgeries in 2019 & 2020.(Was supposed to be 2, but they couldn't..."

Wow, you have a lot going on. I got diagnosed a month ago. As long as I don’t get constipated I do ok. It’s a balancing act with water and fiber and food, and stress. I eat my main meal midday. I take food enzymes. I eat mushy food, think eggs, oatmeal with berries,yogurt. It takes a long time to empty bowels, 3 or 4 small movements in the morning. It keeps me from being in pain. Doctors have been no help. Linzess helps with peristalsis but I try to use herbal laxatives instead. And yes this occupies a lot of time at least in the morning. Good luck.