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Inclusion Body Myositis: I'd like to talk with others
Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)Comment receiving replies
How are the side effects of the mycophenolate? Are there things you can do to minimize the side effects. And is the combination of the two drugs helping you?
Replies to "How are the side effects of the mycophenolate? Are there things you can do to minimize..."
Haven’t noticed any significant improvement. I try to walk with my walker. It gives me confidence about not falling. I do wear compression to keep down the inflation occasionally.
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@catharbert Good morning. I know you didn’t ask this question of me, but i also take prednisone and Mycophenolate. I’m not aware of any side effects to Mycophenolate except very occasional diarrhea. I’m slowly tapering off the prednisone. I had 8 rounds of cytoxan (cyclophosphamide) which jump started the healing in my brain. Then the prednisone kept the healing going. I’ve been on Mycophenolate , since i stopped the cytoxan. It is now doing the job of prednisone .
I have to admit that I don’t have IBM. I have an AD that leaves lesions on the brain. :-(.
Has your doctor suggested the two drugs?