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Left ventricular non-compaction – LVNC

Heart & Blood Health | Last Active: Aug 22 4:06am | Replies (27)

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@caelwarren

good afternoon charlotte my name is cael I am 16 years old and in the past year, I have been diagnosed with Lvnc with a chance of sudden cardiac death. what mental health problems have you experienced after having been diagnosed and what problems have you go through.

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Replies to "good afternoon charlotte my name is cael I am 16 years old and in the past..."

Hi Cael,
I am 31 years old, I was diagnosed with LVNC at age 28. I can tell you that when I was told of this, (and after doing initial research on Google) I struggled very hard mentally. I had just started living in my own apartment and developed very severe anxiety. I thought I would drop dead at any moment.

BUT, I am doing so well since then. I have had additional testing done and read more articles on the condition and it has put my mind at ease.

This condition, (for some people) appears to be reversible! It is sometimes developed as well (as seen in those who are athletes or pregnancy). Nonetheless, please do not feel like this is a death sentence. It is not. Especially if doctors are aware of it, they will monitor you closely if it is necessary.

As far as symptoms, I was having palpitations, heart flutters, chest pain, and occasional lightheaded mess / shortness of breath. With diet and safe pace of exercise, I truly feel like I will be able to live a long time, and so can you!

About three years and a few months ago, I found myself in a state of depression and concern. Despite lacking noticeable symptoms and being physically active in sports and daily activities, I wasn't initially alarmed. Over time, I realized that managing my mental health was crucial. You can either let it affect you negatively or put in your best effort, maintain a healthy diet, stay positive, and cultivate heart-healthy habits.

My primary worry stemmed from having a son at that time. I began envisioning scenarios where I might not witness his milestones—walking, talking, going to school, graduating, etc. Fortunately, I've not only witnessed my son's first steps, but I now have two boys, and it seems another one is on the way. Approaching 31 in April, I am grateful for the positive changes, and I continue to prioritize my well-being.