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Multiple Autoimmune Diseases & Post Covid

Autoimmune Diseases | Last Active: Oct 12, 2023 | Replies (113)

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@shack76

Thanks for the suggestion.
I'm a few weeks a way from making another attempt in Portland. My primary care doctor and a local neurologist believe that OHSU's nerve center (who claims they will consult with any other OHSU specialists as needed in each case, if they do this I stand a good chance with them.)
The main reason for I'm making an attempt with them is because they have the ability to test for autoimmune issues that may have effected the nervous system. That seems important to look at right now because achalasia is both an autoimmune disease and a degenerative nerve disorder. (and it's my third major autoimmune disease) and considering the fact I took a series of powerful vaccines (the circumstances really left me no choice) with eight months of the second surgery this seems important.
Autoimmune reactions to vaccines do happen (I should stress I believe even thought he vaccines may have played a significant role in my current conditions, I don't believe I had much of choice but to take them because if a vaccine can do this, Covid would be far worse-possibly fatal) and that they reactions vary and can be confusing because there is often a delay, because what my immune system is reacting to is the build up of antibodies in my system.
Autoimmune disease have to be one of the most complex areas of medicine, and you're absolutely correct in suggesting that a doctor not willing to say "I don't know" is one to stay away from

Philip

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Replies to "Thanks for the suggestion. I'm a few weeks a way from making another attempt in Portland...."

@shack76 diagnosing autoimmune diseases is so difficult for everyone!! When i first got so sick, no one knew what was going on. AD have such unseen symptoms or ones that make no sense. My husband kept calling the University hospital in the next city and we were finally connected with a neuro-immunologist, who knew exactly what was going on. I’ve been seeing her ever since. Look for medical centers of excellence or university teaching hospitals in your state. Find out if any of the neurologists are cross-trained or have a fellowship in immunology. They frequently treat MS patients. Keep trying and don’t give up!