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Alternative to Prednisone for Treating PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Aug 25, 2023 | Replies (68)Comment receiving replies
You said it perfectly and how I have been feeling as well. As if our quality of life has been robbed from us. I don't know about LDN but I would like to ask my Rheumatologist next time. He was going to try me on Methotrexate but now that the Methoprednisolone (still an annoying steriod) is working he wants to stick with that now and start to taper in a couple of weeks. Even though my inflammation levels are normal (in my bloodwork) I can still feel the PMR lurking in the background so I'm nervous about starting to taper but I can't wait to get off these steroids!
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I was eager to get off the prednisone, too, as I said at length earlier. However, after reducing from 15mg to 10mg I have found pain creeping back on one side (so far) and am now looking for a way to increase the prednisone a bit - since I can get up to 7 hours sleep on 10mg, but was only getting about 4 - 5 hours at a time on 15 mgs. I'm hoping for a compromise around 12mg that will allow me to sleep AND quell the pain. We'll see. I don't like the weight gain, or the puffy face, but I function SO much better if I can sleep. My doctor was hoping the LDN might help with the taper, but in 3 weeks it hasn't made a discernable difference. On the other hand, maybe without it, I'd be feeling much worse. It is such a guessing game until repeated experience tells us what is working for our bodies. Much in our lives is working well and i'm determined to concentrate on THAT and, without diminishing the negative effects of PMR, I am sure I'm easier to be around and more likely to enjoy life if I can keep my balance. WAY easier said than done. Good fortune with your taper in a few weeks, AbbeyC! Let us know how it goes.