Wow for whatever reason I just reread this Dr. Jowsey-Gregoire article from August 2017 and comments going back to then. I love that article especially the 10 behaviors described that are helpful post transplant. That was 5 years ago. Then I was undergoing yearly pre transplant evaluation/review for kidney transplant. My older daughter Elizabeth was at Mayo, Rochester later that fall (November 2017) for a full living kidney donor review for me. We matched perfectly and she had been saving her kidney for me for when the time came that I needed it. She claims that when she did the psych evaluation part that Dr. Jowsey-Gregoire told her that she was “psychologically unfit and emotionally unstable to donate”. My daughter was livid at the time. I’m still looking for a living donor (not on dialysis or transplanted yet). I bounce between Stage 3 & Stage 4 CKD. I’m inactive listed on UNOS with last GFR of 34.
Fast forward to now. Elizabeth is Stage 4 HERZ2 positive breast cancer. She just began chemo on 3/4. Just found out that when she was at Mayo in 2017 something questionable turned up on a lung scan. It was deemed to be “nothing” then. Her diagnostics now show something suspicious in the lungs. I LOVE Mayo. It is the most thorough & trustworthy place I know. But the mama bear in me can’t help but wonder if my daughter’s cancer couldn’t have been discovered sooner.

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