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3 week pain clinic

Digestive Health | Last Active: Sep 27, 2023 | Replies (21)

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@grandmakl

Just seeing this post today (3/6/22). I attended the Rochester 3-week Pain Rehab Clinic back in March of 2007 (I had been diagnosed with severe Fibromyalgia and been put on all sorts of medications and nothing worked except made me feel dopey and out-of-control of my own body). I was looking for a cure for Fibro, but found out there is none. The PRC was helpful and informative, but yes, VERY expensive and thankfully my insurance covered the cost. Three weeks of moteling it in Rochester was on me though. I have mixed feelings on PRC and what I got out of it. I took some of their information to use to help myself and other information I have disregarded over the years as it didn't work for me and my situation. They are very strict on eliminating ALL medications that you take upon entering PRC (even taking an aspirin is not acceptable). I did enjoy being around others who also had pain problems like I did to find out how and what had previously worked or not worked for them (people are referred to PRC by their physicians can have all sorts of various physical pain problems/conditions/diseases, not just Fibro, as what I had/have). Being able to socialize with others during those 3 weeks was helpful ('m still friends to this day with another gal who also went to PRC at the same time as I did in 2007). All of the nurses and other health professionals I encountered there were helpful, although my 'over-seeing' nurse for those 3 weeks was the most unfriendliest, unfortunately - our personalities just kind of 'clashed', I guess. Overall it was a worthwhile experience, but because of the cost (both for the program and to spend on a motel for those 3 weeks ... it was a Monday through Friday program with weekends off) can be cost-prohibitive for a lot of people. A lot of the information provided is common-sense in hindsight (exercise helps, being on narcotics - for me - doesn't, meditation helps, etc. ... basically finding out what works for me (or doesn't work) is mostly an individual experience and one I've had to 'fine-tune' over the years). So my opinion is the overall experience of going to PRC was helpful, but in the past 15 years since I have went to it, I've found that figuring out what helps me personally has mostly been on my own.

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Replies to "Just seeing this post today (3/6/22). I attended the Rochester 3-week Pain Rehab Clinic back in..."

I have been wondering if this program could be helpful for me, and since you have done it, thought i would ask you. I have chronic fatigue syndrome/myalgic encephalitis for years. Worst problems are fatigue and brain fog but do have chronic pain as part of it. i have never taken opiates. It sounds like this program is more focused on getting people off pain meds, is that right? i also have very poor unrefreshing sleep and am constantly very fatigued, some days can't get out of bed. the program description mentions having to participate in all parts of program, but many days i wouldn't be functional until the afternoon. am i right in thinking this program may not be for me? Thanks!