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RM states I don't have Sjogren's

Autoimmune Diseases | Last Active: Mar 5, 2022 | Replies (4)

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@lilymol

Hello I am seronegative for Sjogrens. All doors were closed to me locally because of this and my PCP and I knew something was wrong . My PCP eventually referred me to Mayo through the physician referral program. Mayo docs listened, completed a very thorough exam, performed biopsies/blood work/tests. So I had a positive lip biopsy, positive tilt table (POTS/dysautonomia), positive leg punch biopsy (SFN) & positive for livedo reticularis (and the usual dryness and arthritis). Don't give up! My recommendation is to go to a large university hospital or Mayo or a similar facility. Great Resources: Sjogrens Advocate, Smart Patients, and Sjogrens Foundation.

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