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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@kimberly812

Thank you for the links …I will definitely read them! My lifestyle hasn’t changed much since I was diagnosed. I worked until 2013 and have since retired. We are as active as possible since moving from
the Northeast I’m 2013 to NC we are able to get out to the parks…lakes and greenways to walk and I am a nature photographer so I take lots of photos.
As for diet I have tried all kinds of elimination diets removing dairy and gluten at times but none of that ever made a difference. In fact I was living with the pain quite well until about two years ago when it suddenly worsened and now at times it’s unbearable which can bring me to tears. I am not sure what happened to cause the change but that is what brought about all the testing I had done.
I am now again being treated for chronic Lyme and Bartonella since I began having rashes.
I truly feel there is no hope for me since I can’t tolerate medications and nothing else helps. Thank you again as I am going to read the articles now.
Kimberly 812

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Replies to "Thank you for the links …I will definitely read them! My lifestyle hasn’t changed much since..."

Hi Kimberly, I'm sorry that your pain has gotten worst lately. There's always hope. The Quell device is an interesting distraction and takes a day to get used to. Regarding your sleep or inability to sleep, which we know now is so important, my husband who has idiopathic neuropathic pain takes 5mg of doxepin at night (such a low dose that it's a compounded prescription.). This helps him get a great night sleep with just a little hangover.