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ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Chronic Pain | Last Active: Jun 21 9:17am | Replies (305)

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@kdpetti

Three + years of not being able to sit or bend over. Three unnecessary surgeries and one nerve block targeting the ilioinguinal nerve not the nerves of the abdomen. Diagnosed with CRPS in August of 2021 but firmly believe if I find the right Dr that understands anatomy and this condition I can once again have my life back. 18+ hours a day on my back. This is no way to live. The Mayo won't take Medicare patients and they won't let you pay out of pocket, very disturbing but what can I do?

I contacted Dr Thomas Guillispe of Saint Joseph's of Phoenix as he's with Dignity Health the folks that misdiagnosed my condition. I'll do anything. This is no way to live.

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Replies to "Three + years of not being able to sit or bend over. Three unnecessary surgeries and..."

Did you get an appointment with Dr Gillespie?

Hello, @kdpetti ... I hope you are much better! I am an ACNES sufferer - 4 years left sided pain. Tests, shots, trial of implantable nerve stimulator, nothing helped. Did you get to see Dr. Gillespie? I am considering going to him. Thank you.