Hi Rachel,
This has been so useful for me, as it has really had me thinking what did come first, I would presume at the time it all started with a panic attack and has spiralled since then, at that particular time I wasn't particularly stressed but I did have a heavy night drinking and lead to a bit of a hangover and feeling a little bit down in the dumps, and I suppose things have been on my mind, but they have just gone back and forth like this for over 2 months now, this started on 24/12/22 where started with panic attack, and no other symptoms and everything else developed. then for example on new years day, the burning and stabbing started one night, and it was quite bad, comes and goes, so its hard to say whether it is fibromyalgia as it's not constant, as I said I have tinnitus that come on start of Jan, and seen about ear wax, and audiologist, all said was fine, then the mri etc, and thought that wold be the end of it, but they haven't performed any other tests on me other than ruling out the bloods. is it possible to still have a B12 deficiency, even if the hospital said they were in normal range? the internal vibrations have eased off a bit but i still feel al over, and had this, yesterday my work trousers felt like they were itching and so uncomfortable like i was really sensitive to touch , the list goes on. I did used to go to the gym run around doing errands, and was generally full of life. i feel like this is knocking it out of me when i have a bad day it just ruins my mood and upsets me so i spent yesterday crying even with the pain killers etc, sometimes i feel like when is it going to stop. !
sorry to repeat myself il answer the questions below;
Do you mind sharing a bit more about yourself? May I ask:
Do you feel confident that doctors have ruled out all possible causes?
No, i feel like they hvant got the bottom of whats happening, because they havn't done a full body mri, they have only done to the top of my spine , not right down to my waist or legs where i experience the most pain, and causes most concern. they blamed the internal tremors or vibrations on anxiety. so i am week into my amitriptyline tablets now, and started taking naproxen to ease the pain if it comes about during the day.
How long ago would you say this all began?
24/12/2022 - started with just tingling, and then progressively moved onto stronger fuzzy feeling across all of my legs. sometimes senstive when i wake up too and stand on my feet
What do you think still needs to be done regarding the management of your health?
More checks regarding my nerves , and nerve damage, I seen a chiropractor 15/12/22 and she cracked my neck and also pushed into my back, that's the first and last time ive visited a chiropractor.
What does your daily routine look like?
get up, go to work, i work in an office, i work in sales so it is high energy generally, and then i like going out socialising, going to the pub, catching with my friends, seeing family. and cleaning the house and doing work in my house. i love travelling, and feel like i cant even enjoy that.
Thank you so much for reaching out, it has really made me feel better to know you may be similar, did they also rule out diabetes for you? even though diabetes is generally the main reason for your diagnosis? and who was it that managed to get to the route cause, as my neurlogist only did an observation and then discharged me, very frustrating. i have had moments wheere i felt light headed and off balance too.
i will wait for your reply thank you