← Return to Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Discussion
Comment receiving replies
@vonpinnon

Hello. My 12 year old had COVID Pneumonia in September. Since then she has what she calls “zingers”-shooting nerve pains. Some bring her to tears. She also has some internal vibrations. We have tried 2 rounds of steroids and now just starting gabapentin. I’d love to hear from others (like above) that have nerve issues.

Jump to this post


Replies to "Hello. My 12 year old had COVID Pneumonia in September. Since then she has what she..."

My best t your little one...Were these symptoms present during the period she was experiencing other symptoms of covid, and if after, how long? Is she being treated by a "long covid" doctor/clinic? I've heard of people with extensive nerve issues and I'm sure they'll chime in...

@vonpinnon I'm so sorry your daughter feels zingers. That really bothers me as I know how disturbing and painful it can be. How does she currently deal with and get through the nerve pain flares? Has she learned tools like breathing techniques or meditation?

I had an internal vibration right under my sternum last night cooking dinner! I definitely pushed my limits yesterday doing too much. I immediately sat on the kitchen floor once I felt this strange feeling, but knew I would be fine since I have already had every cardiology and neurology test under the sun. Thank you for putting a name to it. I also experience severe sensory overload, sometimes I am unable to take a shower because my nervous system is overloaded from feeling the water on my skin.

Yes! I had COVID November 2021 with double pneumonia in hospital for 4 days, missed almost a full month of work. My systems started in the hospital with calf swelling, major fullness/pressure I brought it up and they told me it was from all the fluids they were giving me. After I was sent home it continued, I thought it might go away after a few days, it did not. Every follow-up doctor visit I kept asking about it. I had so much discomfort in my legs. They just told me it was from the inflammation. I then started to get sharp stabbing pains in my legs all over, it would take my breath away sometimes. Then I got throbbing, All this continues today, everyday. My feet will turn a reddish/purple and my veins will enlarge, this is when the throbbing is at its worse. I have weakness in my legs from the numbness that I have 24/7. Doctors just say, they don't know all the effects of long-covid. I cant seem to find anyone no help.