Which is one reason it takes us a long time to be correctly diagnosed. My quality of life has greatly diminished over the years. There are some days, I would rather not be here at all. Ironically, I work for Mayo and yet have a Dr to find that actually knows something about EDS. Most would have you just do the Beighton Scale and if you do not get 9/9, then that's about as far as they go. I used to be 9/9, but as I age I have myofacial chronic pain and my body is full of deep muscle knots. I am not longer able to touch my hands flat onto the ground. It's to bad that they don't realize there are more than just flexibility that goes into EDS that is considered criteria. Until more Drs become familiar with it, we will suffer and continue to be gaslighted.