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Has anyone else been diagnosed with an endolymphatic sac tumor?
Brain Tumor | Last Active: Dec 21, 2025 | Replies (29)Comment receiving replies
@sunshine80. Had to create a new email that's fantastic that your receiving did they say if the facial paralysis would be permanent that's what I'm dreading. My tumors only 2cm by 2 cm I think I'm due to go back on the 15th march for a review jist so they can see how it's growing etc I'm only 37 so really anxious about it
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Hi @scottjg984. I believe you are asking about having an endolymphatic sac tumor removed. I have had surgery on this 5 times. I just had my 5th surgery last week. I am sure I can answer any and all questions. I didn’t think anyone else had this tumor bc there are so little reports on it. I am 41 yrs old now, first survey was at 36