Hello Rachel, I do have a diagnosis Chronic Pain Syndrome, but nothing was done to make sure that something else is wrong with me. They asked questions and said I have Chronic Pain. Now my new pain Doctor just talks about titration of the meds. Well, should we find out for sure I don't have other problems?? There was nothing leading up to this pain. I was going on vacation, when we arrived I was in pain. I thought I was sick, but it got worse so we came home and I saw my regular Doctor who gave me hydrocodone and sent me to a pain clinic. By the way, that was years ago.
I do have Lewy Bodies Dementia, Bipolar 1, PTSD, panic anxiety disorder. Prior to this pain I was just fine. I mean I had a meds Doctor for my mental health and A psychatrist. It was also before dementia. I'm writing this kinda in a nutshell because it's complicated. I feel like I am not being taken care of properly and I am the one that wants to come to the Mayo Clinic. I am going to my Doctor for a referal. I am desperate. I have really no life anymore. This pain effects every faucet of my life. If it is Chronic Pain then I will accept that, but to never have anything done bothers me. My other pain Doctor did these shots in my back for my neck and that was disastrous. I have this feeling in my back at all times it's very hard to explain it is like electrical and feels like I'm being bit. When it happened I told the doc. he said it was necroitis. Please excuse my spelling, punctuation and sentence structure I have lost this. I had a neurologist, but I had so many specialists and she was testing me with cat scans, mri, and pet scan. I asked my Doctor at the time if I needed a neurologist she said not really so I quit going. I had seen many neurologists in the beginning to make sure, well as sure as you can because you can't be positive until I die and they dissect my brain. I asked over and over is it Lewy Body. I had one Doctor yell at me and say stop asking yes you have Lewy body. I'm very tired mentally and physically. I feel, as I said, just left behind. They go through motions prescribe meds and that's it. By the way, my new pain Doctor I don't care for at all, but I can not change pain doctors. My regular Doctor told me this and she really doesn't no why. I have no problems and have never had any problems with the pain clinic. So why can I not change my Doctor we just do not fit. I mean at all. I can not believe that I have to stay with a Doctor that does not fit, but I do. I have no control over this part of my health care. I did not ask to be put on these meds. I don't want them, but without them I would literally be in bed and that is the facts.
I know I am just going on and on. I'm sorry about this Rachel. I am trying to explain everything, but there is so much and this has been years. Thank you for asking. Have a nice evening. Sincerely, Stacy