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So many questions. Seeing Rheumatology and GI at Mayo JAX

Autoimmune Diseases | Last Active: Apr 17 12:32pm | Replies (49)
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@dakari

I know exactly what you are talking about. I was diagnosed with sero-negative RA two and a half years ago . I'm on my fourth doctor and more medications, injections and infusions than I can count. I've had so many MRI's that I'm on a first name basis with all the radiology technicians. Besides my RA do, I'm seeing a GI specialist, a hematologist, an ophthalmologist, a dermatologist and a pain management specialist - besides my regular GP. I am so full of drugs that can kill me, I just want to say stop and let the disease take its course. But somehow and for some reason, I keep getting up in the morning hoping for a better day... and some days things are better. I guess we fight the good fight until we can't fight any more

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Replies to "I know exactly what you are talking about. I was diagnosed with sero-negative RA two and..."
asarrett56 | @asarrett56 | Mar 3, 2022

It is truly hard when doctors are in such a hurry to but a name to your systems. I too on so many meds.
I feel extremely overwhelmed.
I suffer with ra and fibromyalgia

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lloydje1 | @lloydje1 | May 2, 2022

Dakari,
I was diagnosed with RA in January 2022. Looking back, I’ve had RA episodes since 2006 but was misdiagnosed with Lyme’s disease, which has very similar symptoms until the knuckles began flaring in December which was the tell-tale sign. My CCP was 250 and sero positive. I began Rinvoq in March and due to insurance switched to Enbrel in April. I’ve had two months of drug therapy. I also started whole food plant based, low-fat diet 3 weeks ago. That is when I began to experience big changes.
I also have been experiencing digestive disorders. My Rheumatologist says its unrelated to RA but the online information I’ve gotten says RA causes low stomach acid which makes it difficult to digest proteins and fats, hence the diet.
Until I began cutting out fats, especially the hidden ones in salad dressings and other processed foods, I still had issues with digestion. When I avoid oils/fats I can sleep well. The proof is in the pudding. You have to try whole food plant based, low-fat to see if it helps. I urge anyone with RA to watch youtube videos of the Paddison Program.

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