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Just diagnosed with Endometrioid Adenocarcinoma: What to expect?
Gynecologic Cancers | Last Active: Dec 12, 2022 | Replies (239)Comment receiving replies
@naturegirl5
Yes, thank you it is later this week. I would love help with my questions. So far I have follow up (frequency, tests to expect, duration), Results of MSI (I think it is called) genetic test, best diet to follow, chance of reoccurance, support group availability, how to get relief from insomnia, crying, moodiness, etc. And when I can return to work. Anything else I am missing?
Replies to "@naturegirl5 Yes, thank you it is later this week. I would love help with my questions...."
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Hello, @cmb2022
At my followup visit after surgery, my GYN/ONC surgeon gave me a Cancer Survivorship Plan. The Plan has my diagnosis, cancer staging, background information, cancer surgeries and recommendations for my wellness. It also had the follow-up recommendations and signs and symptoms of recurrent cancer. So here are some questions that could be answered before you ask them - that happened to me but being prepared is always good.
1. Will you give me a Cancer Survivorship Plan?
2. What is the survival rate for my diagnosis and cancer stage (typically stated over 5 years).
3. What are the signs and symptoms of cancer recurrence for me?
4. Who will I see for my follow-up appointments, and how often? (My plan had that information for my cancer care team).
5. What tests are done at follow-up appointments and/or physical exam?
6. You have menopausal symptoms so who will help you with these symptoms? Is there a Women's Menopause and Sexual Health Clinic or doctor where you can go?
7. Help with diet. Referral to a nutritionist who specializes in cancer.
8 Genetic testing results.
9. Ask for a copy of your pathology report.
10. Any restrictions for when I return to work?
I repeated some of what you wrote in your note and added a few things. If I think of anything else I'll add it in another post.
I'll be thinking of you this week and hope that you get the information you need and want at your appointment. Will you come back and let me know how it goes?