@bsrice Hello there. Thank you for sharing your experience at Mayo Jacksonville and how your diagnosis came about. Central Sensitization Syndrome (CSS) and daily persistent headaches are difficult, but I have confidence you will learn tools to help manage.

Way to go on keeping a daily notebook with 10 months of data. It seems to have paid off for you in narrowing down diagnosis with your Mayo doctors. I did the same and it was implemental in my CSS diagnosis as well. You must be relieved to have answers and a direction. Do you mind sharing a little more about the pain management program you will be attending in May?

@bsrice and others...Good for you! I'm so pleased for you that you had such a good experience at Mayo Jax. I'm afraid I'm a regular on that beautiful, healing campus, with a plethora of issues all being diagnosed and treated. But, this nutty body keeps finding new challenges for me and the staff at Mayo.

The first thing I noticed on campus, other than the beauty surrounding you from every direction, is kindness. It's legitimate,and everywhere you go. The dining room, the restroom, labs, testings, staff and doctors. The volunteers are also the best I've seen. They're gray haired like me, so it's kind of fun to say 'hello' and get such a great smile and help.

Again, congratulations on getting to Mayo Jax and getting solid answers. The Mayo system is truly remarkable. I am still amazed that my doctor may pick up the phone and call a colleague in his department or another altogether to discuss my concerns. They actually speak with each other about the patients! Amazing! They consult and we get the benefit of the collective knowledge and care of each doctor we see. And some we don't...

I went this week to another hospital in Jax for an x-ray and a couple of tests, ordered by the only non-Mayo doc I see now, my PCP. The comparison was startling. The level of concern for me as the patient was far less than when I visit Mayo, I was actually shocked. I was in pain, I needed help getting off the table...One fellow was wonderful, explained their procedure, and offered his strong arm. All others stood around or ignored me. I am truly blessed and now you are to have access to such excellence.

OK. Enough. Just to say welcome to Jax Mayo and may your visits continue to bring you healing and peace. BTW: Dr, Wang is my rheumatologist as well. He's a gentle, kind, knowledgeable doctor who treats his patients with respect and care. He's helping me greatly. I've seen several neurologists, all excellent.

Blessings on your journey. Elizabeth

Did you have to be seen by the General internal medicine first? How do you get in? Rochester denied my application to be seen at GIM?
I’m from CA seeing a neurologist and rheumatologist.