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New GI patient with questions as I prepare for Mayo! ❤️
Visiting Mayo Clinic | Last Active: Mar 3, 2022 | Replies (36)Comment receiving replies
Hi! I have my first appointment in march and she said to plan for 5-7 days of testing. My first question…do they do testing on the weekends? Or are we talking 5-7 business days? Also…is there anything you did or wish you had done for your appointment that I should make sure to do? Background:
I was diagnosed with Crohns 18 months ago, but have unexplainable pain and gas combined with constipation almost constantly. Always worse when I eat. My dr doesn’t like the look of my scans and he feels there is something mechanical or motility wise going on. But the surgeon refused to do exploratory surgery so he referred me to Mayo. I’m really hoping to get some answers and get my life back! 🥺🥺
Replies to "Hi! I have my first appointment in march and she said to plan for 5-7 days..."
Hi @nikkipooh79, welcome to Mayo Clinic Connect. I added your question to the Visiting Mayo Clinic group as well. You may find other discussions in this group to be really helpful. For example these ones:
- Tips for your first Mayo Clinic visit and tests/appt schedules: https://connect.mayoclinic.org/discussion/tips-for-first-dr-visit-and-testsappt-schedules/
- New Gastroenterology Patient going to Mayo Clinic in Roschester https://connect.mayoclinic.org/discussion/new-gastroenterology-patient/
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
Which Mayo Clinic are you going to Nikki?
Hi @nikkipooh79 - I have spent time at Mayo Jacksonville GI as well as once in Rochester.
My first impression was that the visit was so well organized- but still flexible if I needed another test or consultation.
I have stayed 4-5 days each visit. They don’t test on weekends.
I was traveling alone, so I chose to stay at the Marriott on the campus in Jacksonville.
In Rochester I stayed at the old Kohler hotel, attached to the clinic.
I was very pleased with each visit and I hope you will be too.
@pcon227 - Jacksonville was my main center - my doctor there referred me to Rochester for a second opinion. I saw Dr. Joseph Murray. He is THE expert on celiac disease and very well known. I felt honored.
This showed that I liked both centers- Jacksonville being able to get a second opinion from a world renowned expert!
Thank you , I’ll check that out . I’ll pray you get relief soon .
I have my first appt with GI too the end of this month. My letter said 5-7 business days. Praying that they find out what’s causing your symptoms.
I've only gone to Mayo MN.. saw Dr.Halland for several years, but he is gone now to Australia.. He tested GI things 3 times in the first day (I did blood and urine the evening before at a satellite Mayo in NW Rochester .
I had a lot of digestive issues and extreme epigastric pain, trouble eating and lost 30 pounds. After a million tests, someone on this site suggested mals -a vascular compression syndrome. There’s a great Facebook group-Mals Awareness. Mayo and all my other doctors- gi, vascular, internist, primary, and a few more never found it . Hope you find answers.
Yes they tested 3 years ago w/ 5 hr Gastric emptying study . Results norm .
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I went to Mayo Clinic Jacksonville for testing in Oct . They only did the Covid test on Sunday , then schedule tests Mon - Friday .
My tests were 2 hours n Mon and bigger test on Tues . We stayed Beach side at VRBO condo for n beach in Jacksonville Bch w our two pups .
I had to wait 7 months to get appt and testing done . Unfortunately this was my last resort after 8 years , 5 Gastro Drs in 2 states and over 15 tests done ✅, 6 diagnoses. They still cannot help me . I did everything holistic and diet wise and RX . I’m not healed and they look at me as medical mystery now ?
I hate it , it’s robbed me of 8 years of my life and counting ….
I pray you get results and fixed !