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Recently diagnosed with Small Fiber Neuropathy - so many questions
Neuropathy | Last Active: Mar 8, 2022 | Replies (78)Comment receiving replies
Hello Trish. I'm just a little younger than you and am a full time student right now. I have another 1.5 years to go to get my degree. My quality of life isn't too good either, and it's a constant battle, esp right now with the demands of school. I am on campus at my school and have a commute of about 2.25 hours daily. I think this is also interfering with my pain levels, but there's no solution.
I wish people around me understood what it's like to have this disease. I hate it. Do you have any trouble with not feeling temperatures in your feet, legs or other parts of your body?
-Janine
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Hi Janine,
So sorry you have this but you are not alone here.
I have always had cold feet. That sweat? Weird. My body is confused but I suggested to my Neurologist that it may be affecting my autonomic nervous system, she agreed! Seems no one can help or understand
My Lyme disease doc explains so much as we think its and co-infections caused SFN back in 2000.
My body cannot work right with temperature changes.
School and driving are stressors for me (working on Nursing renewal).
I wear socks on summer even.