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← Return to Permanent SIBO due to removal of ileocecal valve
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Permanent SIBO due to removal of ileocecal valve
Digestive Health | Last Active: Apr 2 6:54am | Replies (191)Comment receiving replies
Thank you so much for sharing your history. I also had the same surgery for the same reason in 2015. My doctors never believed the significance of how it changed my life. And continued to get worse. Diarrhea, occuring unannounced, in my pants, when i was out. I stopped going out, became weak, with chronic fatigue, muscle tenderness, weakness, brain fog and rashes on my finger. Finally, I have a gastroenterologist who believes in SIBO. I have finished my third course of antibiotics. Diarrhea returns about 2 1'2 weeks after I complete them. I will ask about Xifaxan when I see him next week. I have regained some weight finally, and I am going for long walks. It is sad though. That symptoms return.
Replies to "Thank you so much for sharing your history. I also had the same surgery for the..."
My surgery was 50 years ago! I have had b12 shots monthly forever and take extra vitamin d and potassium. All necessary. A few months ago the diarrhea became so bad the I too felt I was destined to become homebound, due to the urgency and accidents. A new gastro suggested I take Welchol, a medicine for cholesterol that has the side effect of constipation. I started slowly- 2 pills per day, now at 4. My diarrhea is back to my "normal" and manageable. No urgency. It is a miracle. Not a well known cure- most gastros don't even know to try this. Read about it and suggest it to your doctor. It is an off label use for Welchol. It saved my life!
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It really is hard to deal with during flareups. I'm sorry you are having problems. Enlist your Drs help to maybe get patient assistance to help pay for this crazy expensive drug.