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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@catelynn

Rits So Sorry to read your storey....terrible trauma you've been through. Along with physical treatment I hope you are getting emotional support?
In response to your ileostomy question and to answer Colleen about my story: I am not a fan of an ileostomy...alot of concerns related to same esp. if you have an"overactive stoma" The ostomy bag is continually filling up & has to be drained and I deal with multiple leaks/explosions resulting in incontinence typically when sleeping ( though I set the alarm--can only sleep 2 to 3 hours at a time in effort to not get leak} needless to say I am sleep deprived. Believe it or not I went in to have what appeared to be a tumor on appendix that lead to an appendectomy. About 3 or 4 days later day before discharge I went into respiratory distress taken to ICU put on life support septic followed by 5 more surgeries, had a cardiac arrest--down 10 minutes they called my husband to see if I should be resussitated By a miracle I survived. Was in a coma not medication induced for 38 days Then finally came out of it. During above I was given Last Rites twice.
When I was finally conscious enough discovered I had an ileostomy something I made clear I didn't want.... Still don't know how/ why this happened MD not forthcoming to explain (an aside-- contratcted Covid and wound up on a respirator for 7 days during course of my treatment. Had to learn to stand & walk again A Real Nightmare. There is more but I'll shut up now....

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Replies to "Rits So Sorry to read your storey....terrible trauma you've been through. Along with physical treatment I..."

Omg How horrible. I'm so
sorry this happened to you. Can they reverse the ileostomy?