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Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Autoimmune Diseases | Last Active: Jun 24, 2023 | Replies (27)
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@mareeinga

Hi Jeff,

I live in Georgia and was diagnosed at Mayo Rochester. LEMs is a very hard to diagnose!! The good thing is we now have FDA approved medicine. Does your wife have a doctor in Georgia she likes? If not, I know a great one. After leaving Mayo, I now follow up with Gavin Brown at Laurete Medical Group. If I can be of any assistance, Dr. Gavin Brown has been helping me for almost 10 years. If you would like information about getting around Mayo happy to help.

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Replies to "Hi Jeff, I live in Georgia and was diagnosed at Mayo Rochester. LEMs is a very..."
John, Volunteer Mentor | @johnbishop | Mar 19, 2021

Hi @mareeinga - Welcome to Mayo Clinic Connect. Thank you for replying to Jeff @dawg919 to share your experience with LEMs. I added his Connect member name so that he will receive an email notification in case he is not following this discussion.

Do you mind sharing what you were searching for when you found Connect?

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