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Anyone tried Spinal Cord Stimulation for Chronic Pain?

Neuropathy | Last Active: Jan 31 9:35pm | Replies (410)

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@tigreyes2004

It is the Boston Scientific. Do you know anything about it? This is all new to me & I am scared. Any info would be appreciated.
Thanks
Tigreyes

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Replies to "It is the Boston Scientific. Do you know anything about it? This is all new to..."

I had the Boston Scientific SCS implanted on December 30. My pain is complicated and I have had it since 2019–injury. It is 24/7 and here is location and type of pain:
Right SI joint and tailbone burning pain - almost always

Zinging like electric shock from genital area on left side up to navel, around left hip, and down entire left leg into foot

Neuropathy in left foot with loss of sensation to touch. Loss of sensation on the leg in certain areas.

Extreme tightness in left groin, hard to flex the joint. Constant electric shocks down leg into bottom of foot and a squeezing sensation as if the leg is a wash rag and someone is trying to wring it out. Pressure in knee and back of thigh and top of ankle that makes it difficult to flex. Trying to kneel on that left leg is very painful, as well as lying in left side in the hip area.

Heavy pressure on rectal area. It feels like there is a small, but heavy bowling ball pushing downward when I walk or lie down.

Left leg is heavy and difficult to move at some times while walking. Sensation is that there is a tight rubber band stretching from my tailbone to hip flexor, psoas, and top of thigh when I am trying to walk. Hard to walk with fluid motion.

Activities that increase the pain are sitting, driving my car (worst), lying on my back, kneeling. Then standing, walking, skiing, (yes, despite the pain I ski and walk 30 minutes a day twice a day). (I also paddle board despite the pain. Very difficult to stand up but once I’m erect on board I can maintain my balance.

Sleeping is disrupted often by the burning tailbone sacrum pain. Right now it is keeping me awake

We still don’t have my device tweaked to relieve much of the pain. However the rep and other patients I’ve talked to, tell me that it took them 6 months to get it to where it really helped their pain. I am holding onto that information for hope. My pain is complicated and in several areas and the nerve pain is different in those areas from one another. So it makes sense to me that it will take time until I find the perfect programming. I’m not giving up yet.

I have tried PT, massage, acupuncture, Gabapentin. The only thing that dulls the pain is a narcotic pain med, but I refuse to take it during the day.

My trial helped my low back pain 80% but did not help the leg, foot or tailbone burning.

Look at the Boston Scientific website for information about the SCS, then look for reviews about the unit.