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My lyrica journey

Addiction & Recovery | Last Active: Apr 10 7:39pm | Replies (39)

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@amandaa

Hey @williambogle and welcome to Mayo Clinic Connect.
There are lots of members on Connect that have dealt with Lyrica and Neuropathy.
I wanted to connect you with members like @wizzywinkles3, @clutch, @hopeful1953, @janstar61, @cwallen9, @zailey, @jimmy370, @johnbishop, and @jakedduck1. Would love to know what they have to add to your situation.
How are your symptoms as of now?

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Replies to "Hey @williambogle and welcome to Mayo Clinic Connect. There are lots of members on Connect that..."

Good morning and thanks. I wasn’t sure about which symptoms you were inquiring about. As for the neuropathy I’ve made up my mind that any amount of burning is quite tolerable compared with the withdrawal from this poison. As far as the withdrawal from tapering I am, in my opinion, is about normal. I know that many are saying that my tapering is too fast but I’m dealing with it in my own way. I’m down to 50mg at bedtime and 25mg in the morning. My withdrawal symptoms are mostly nausea, anxiety, itching and anorexia. All are controlled at present. I’m noticing a predictable pattern with every decrease so I’m able to anticipate in advance. I don’t think people need to nail down an exact duration of a taper. It all depends on the person. I’ve reached out and researched the supplements needed for healthy brain healing and have started those as well. Now it’s just a matter of time. Luckily I have a supportive husband who is a PA and I’m a retired RN so I feel like I’m in as much control of the situation as I can be. Thanks for all of your concern!

Thanks Amanda for mentioning me in your post. It is always such a relief to hear from others, but i wish nobody had to go through this.
I'm still tapering slowly and it feels never ending. I am really strong willed but that means nothing to lyrica😁.
I've felt so weak and exhausted i can barely walk. I just wait till that passes and do as much as i can by distracting myself with things I love.
Like 70s disco music, and corny 80s soaps.
i have found a tiny dose of CBD oil has been incredibly helpful. Not only for the burning side effects , but also my nerve pain and sleep.
I only take 0.03ml and i sleep like a normal person. I have always been an insomniac so i am so thrilled.
I still have not found a GP who knows about lyrica withdrawal unfortunately.
I am fine doing this alone but it upsets me that so many people are just not getting support.