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Any LEMS (Lambert-Eaton Myasthenic Syndrome) people out there?

Autoimmune Diseases | Last Active: Jun 24, 2023 | Replies (27)
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@dawg919

My wife has been diagnosed with LEMS here in Georgia but has no successful treatment as yet. Currently, she's sleeping around 18 hrs per day and eating very little. She has no energy whatsoever. She gets out of breath taking a shower. We have an appt. with Dr. Sorrenson in Rochester in April and are very optimistic that he and his team can get my wife some help.

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Replies to "My wife has been diagnosed with LEMS here in Georgia but has no successful treatment as..."
John, Volunteer Mentor | @johnbishop | Mar 12, 2021

Hello Jeff @dawg919, Welcome to Mayo Clinic Connect. I know it must be difficult for your wife and yourself when she is sleeping so much, eating very little and not knowing what is going on or what type of treatment will help. I think it's good that you have an upcoming appointment at Mayo Clinic Rochester and hopefully they will be able to confirm the diagnosis of Lambert-Eaton Myasthenic Syndrome (LEMS) and find a treatment to help your wife.

There is another discussion that you might find helpful for your upcoming appointment at Mayo Clinic in Rochester.
- Evaluation Appts: https://connect.mayoclinic.org/discussion/evaluation-appts/

Are you driving or flying to Rochester from Georgia?

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