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Movement disorder

Brain & Nervous System | Last Active: Mar 1, 2022 | Replies (14)

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@remybelle

Thanks for your response, Jennifer. I have Medi-Cal that is only accepted in my County. I’m currently with Stanford but the new neuro just relied on my UCSF neuro notes. Apparently all genetic tests were done at UCSF and no more can be done.

I have not given up hope that’s why I turned to Mayo.

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Replies to "Thanks for your response, Jennifer. I have Medi-Cal that is only accepted in my County. I’m..."

I am also hoping that Mayo would come up with their own diagnosis

@remybelle The Mayo Clinic Care Network may be an option for you.
https://www.mayoclinic.org/about-mayo-clinic/care-network/members/map
Mayo Clinic has a long history of working together with other providers across the globe to solve complex medical challenges. The Mayo Clinic Care Network (MCCN) helps keep care local and in many cases, spares patients the expense and inconvenience of additional appointments and unnecessary travel. Mayo Clinic specialists work together with physicians, consulting and sharing resources to complement physician expertise –