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Ostomy: Adapting to life after colostomy, ileostomy or urostomy

Ostomy | Last Active: Mar 24 1:09pm | Replies (419)

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@colleenyoung

Hi Catelynn, welcome. Tell us a bit more about yourself. What led to your needing an ileostomy? What challenges are you coping with?

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Replies to "Hi Catelynn, welcome. Tell us a bit more about yourself. What led to your needing an..."

Rits So Sorry to read your storey....terrible trauma you've been through. Along with physical treatment I hope you are getting emotional support?
In response to your ileostomy question and to answer Colleen about my story: I am not a fan of an ileostomy...alot of concerns related to same esp. if you have an"overactive stoma" The ostomy bag is continually filling up & has to be drained and I deal with multiple leaks/explosions resulting in incontinence typically when sleeping ( though I set the alarm--can only sleep 2 to 3 hours at a time in effort to not get leak} needless to say I am sleep deprived. Believe it or not I went in to have what appeared to be a tumor on appendix that lead to an appendectomy. About 3 or 4 days later day before discharge I went into respiratory distress taken to ICU put on life support septic followed by 5 more surgeries, had a cardiac arrest--down 10 minutes they called my husband to see if I should be resussitated By a miracle I survived. Was in a coma not medication induced for 38 days Then finally came out of it. During above I was given Last Rites twice.
When I was finally conscious enough discovered I had an ileostomy something I made clear I didn't want.... Still don't know how/ why this happened MD not forthcoming to explain (an aside-- contratcted Covid and wound up on a respirator for 7 days during course of my treatment. Had to learn to stand & walk again A Real Nightmare. There is more but I'll shut up now....