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New GI patient with questions as I prepare for Mayo! ❤️
Visiting Mayo Clinic | Last Active: Mar 3, 2022 | Replies (36)Comment receiving replies
I started with Mayo Rochester in November 2021 with hope. They did find SIBO but thats not the cause of all this pain. So far they have been unable to find the cause. I have been on two week long visits where all testing was completed and then meeting with doctors for treatment plan. They pretty much washed their hands of help when they identified the SIBO. I was told my situation is too complicated and to seek local treatment. Been there done that. Thats why I went to Mayo. So long story I have an $11,000 bill that insurance didn’t cover, and health remains the same. Undiagnosed and untreated. I hope you have a wonderful experience but I was really let down with same answers and no road to healing. I was sure they were the answer and they were not. The facility is gorgeous.
Replies to "I started with Mayo Rochester in November 2021 with hope. They did find SIBO but thats..."
@regalrottweilers I had to look up "SIBO" and this Mayo link explains that it can be caused by a slowing of the passage of food and waste through the intestines.
https://www.mayoclinic.org/diseases-conditions/small-intestinal-bacterial-overgrowth/symptoms-causes/syc-20370168
I know because of the work that I do with my physical therapist, that constrictions or adhesions can affect the intestines and slow them down. Even pelvic alignment affects this if you have an inflare of the hip bones toward your belly. The pelvis is jointed which allows for movement of the bones during birth, but because major muscles connect to the pelvis, it can twist it or pull it out of alignment which can put pressure on the intestines passing though the abdomen. That may be an avenue to explore. My therapist does myofascial release which stretches tight tissue and tight tissue can cause pain. Here is our discussion about MFR. You wouldn't need a specific diagnosis to do this therapy. The therapist can assess with their hands the pattern of tightness in the body and follow that pathway to release it. It may take several sessions or weeks/months for results depending on how tight the body is. It is like peeling off the layers of an onion to find out what the next layer brings. I have had a lot of success with MFR.
Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
There is a provider search at http://mfrtherapists.com/
Has your evaluation included any physical therapy work?
I am so sorry to hear this. I pray that you find out the cause to your pain. I worry that they will not figure out mine either and I am so scared to have to continue to live like this forever. I am so weak and drained. Thank you for your response and I pray that you find out the cause of your pain.
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Regalrottweilers, how disappointing that so far there have been no answers. Might the Pain Rehab Center be an option for you?
I think you might wish to see this discussion and ask questions here:
- Questions about Mayo Clinic Pain Rehab Center https://connect.mayoclinic.org/discussion/status-of-mayo-clinic-pain-rehab-program/