It’s certainly a difficult decision. When I experienced something similar I decided to look at my diet and see what foods would potentially be inflammatory in my body - I omitted all deadly nightshade foods, ie potatoes, tomatoes, etc and also cut down dramatically on high sugar foods. I Eat a lot of plant based foods (not everyone’s choice lol) and I started to feel tons better. It may not work for everyone but for me it was worth a try. CRP down to nearly normal range, minimal pain or discomfort. Good luck 🤞

@queenie2030, I agree with @sashakay that it is a difficult decision. I can only defer back to what my rheumatologist told me the first time around with PMR when I thought I would never get off of predinisone. He told me to listen to my body and keep a daily pain log then don't taper down unless your pain level is at some level you are OK with. For me, that was a 1 or 2 on a scale of 10 being the highest. I also think@sashakay makes a great point about watching what you eat and reducing or eliminating the ones that are inflammatory. Here's some information that might help:

Polymyalgia rheumatica diet: Foods to eat and avoid: https://www.medicalnewstoday.com/articles/321683

Hi @queenie2030 have you spoken to your doctor? Do you have a rheumatologist? The prednisone is supposed to decrease inflammation dramatically. Maybe there's something else going on, causing the inflammation, that isn't being addressed by the prednisone. My aunt had Giant Cell Arteritis. She was taking prednisone for it, but she also had an absess in her GI tract that was not diagnosed because the prednisone masked her symptoms.
My Rheumatologist only goes by the CRP. He doesn't think the ESR is accurate. My highest CRP was 10.6, with Giant Cell Arteritis, before I went on Prednisone. Now it's down to 1.2 (on 4 mg of Prednisone). All the best.