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Wife Just Diagnosed w/ ES SCLC - What Can We Expect?

Lung Cancer | Last Active: Aug 20, 2022 | Replies (222)

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@merpreb

Good morning Bob- I can certainly understand your angst concerning being in a queue for testing and for all the delays that are taking place all over the medical field. They have suffered by losing a lot of people to COVID 19 and are very short-staffed everywhere. All of us have to bite our tongues and sometimes wait. I have found that most people are trying their best and that applying more pressure can work against you and create a more tense situation with them.

When this happens to me it's my husband who has to calm me down and says that everyone wants to be first in line. It's a hard lesson for me to accept. The health care department is a foreign country all within itself!! You will find that cancer is a "hurry up and wait game" exacerbated by COVID 19. You are literally at the mercy of so many different departments that it's dizzying.

This is also such a delicate time for you and Liz and your family. It's a time to make sure that you take care and stay healthy. If Liz is well enough, get out and do something that she loves to do. Hopefully, you have all had vaccinations and at least Liz should wear a mask when out and about.

I wish that I could tell you that the delay isn't a blow but a crimp in the cancer process but I don't think that you will believe me. I was my mother's caretaker and in order to handle everything I had to take some time for myself by taking a bit of a walk all by myself. Not knowing what your home situation is like I hope that this is possible for you. I know that it might sound selfish to do but you will be better off with a bit of a break. What do you think?

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Replies to "Good morning Bob- I can certainly understand your angst concerning being in a queue for testing..."

Merry, all is good at home. Liz & I have already gotten past the bumps of the last few days and we are looking forward to having our daughters visit this weekend. I am able to work from home when needed and will be back in the office Friday & Monday while the girls are here.

Our visit with the Cardiologist today began with an EKG and showed that her heart is in good shape. There was very minor fluid built up around the heart showing on the ultrasound. As a reference, the normal amount of fluid is <20, hers is at 22 and actionable levels requiring draining the fluid is >30. She will get a follow up ultrasound in about 10 days to ensure that the fluid is not increasing. So her shortness of breath is probably due to reduced lung function from COPD &/or cancer.

We are still waiting on approval for her P.E.T. scan from the insurance company. If we actually get it tomorrow, there is a good chance that she will get the P.E.T. scan next Tuesday or Wednesday. She has a brain MRI scheduled for next Tuesday to ensure that the cancer has not spread there also.

That's about it for this week.... Have a good weekend everyone!!