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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 17 hours ago | Replies (6026)

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@johnbishop

Hello Roger @gabyroger, Welcome to Connect. You mentioned Orthostatic HP was ruled out. From what I've read, I think Postural orthostatic tachycardia syndrome (POTS) is another condition that can affect your blood flow and cause dizziness when standing up. Here's some information I found that sounds similar to the symptoms you describe.

"Dizziness or light-headedness when standing occurs in about 20% of older people. It is more common among people with coexisting disorders, especially high blood pressure, and among residents of long-term care facilities. Many falls may result from dizziness when standing. Older people should avoid prolonged standing.

The increased incidence in older people is due to decreases in the responsiveness of the receptors that manage blood pressure plus increases in arterial wall stiffness, which make it more difficult for arteries to move more blood to increase blood pressure. Decreases in receptor responsiveness delay the normal heart and blood vessel responses to standing. Paradoxically, high blood pressure, which is more common among older people, may contribute to poor receptor sensitivity, increasing vulnerability to dizziness when standing." --- Dizziness or Light-Headedness When Standing Up: https://www.merckmanuals.com/home/heart-and-blood-vessel-disorders/symptoms-of-heart-and-blood-vessel-disorders/dizziness-or-light-headedness-when-standing-up

Postural Orthostatic Tachycardia Syndrome (POTS): https://my.clevelandclinic.org/health/diseases/16560-postural-orthostatic-tachycardia-syndrome-pots

There is also a discussion on POTS if you want to view what others have shared --- POTS - postural orthostatic tachycardia syndrome: https://connect.mayoclinic.org/discussion/pots-postural-orthostatic-tachycardia-syndrome/

Have you thought about seeking help at a major teaching hospital or health facility like Mayo Clinic?

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Replies to "Hello Roger @gabyroger, Welcome to Connect. You mentioned Orthostatic HP was ruled out. From what I've..."

I am impressed by your response. For over 6 months and over 6 doctors not a one has mentioned POTS or even come close even though I told them that my bp goes up as well as hrwhen I stand even from a sitting position. We have tested this at least 10 times. The dizziness, lightheadedness persists as long as I am standing. I also have lumbar stenosis, fairly advanced at L3-4-5 which obviates surgery. This condition keeps me bent over when I stand and I have to use 2 ski poles for support when I stand. I had a sailing buddy who had a similar fate and. Ended his life due to the pain and disability.
I had a follow-up MRI with a neurologist today who could not offer me more than A cortisone shot in the spine and physical therapy . I am very disappointed. I am 79 and until 7 months ago enjoyed small boat sailing and racing as well as rowing my rowing shell.
I will definitely follow up on your suggestion.
BTW-I was a research pharmacologist back in the 70’s and got into management at Ciba. Pharm and retired from GlaxoSmithKline 15 years ago
Thanks again . Maybe the Mayo is in my future.