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Inclusion Body Myositis: I'd like to talk with others
Autoimmune Diseases | Last Active: Oct 20, 2023 | Replies (97)Comment receiving replies
Hi @charlie01, I'd like to add my welcome along with @becsbuddy. You'll notice that I moved your question to this existing discussion about BMI
- Inclusion Body Myositis: I'd like to talk with others https://connect.mayoclinic.org/discussion/inclusion-body-myositis/
I did this so you can connect with @mklam @catharbert @tarmansbks who are talking about treatments and things you can do for yourself to help manage Inclusion Body Myositis.
What symptom or symptoms do you find the most challenging at the moment? What helps?
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I believe my disease may have started after an auto accident in 1997 which damaged nerves in my back and resulted in loss of fine motor skills in my hands. Not diagnosed until the last three months. Recently, within the last year, the strength in my legs have deteriorated drastically. I have fallen several times and now I am more comfortable using a walker. My balance is off and my legs just collapse without warning.