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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 3 days ago | Replies (6026)Comment receiving replies
@archermac15 My dear, my dear, my dear, Evie. I hear all of what you're saying and want to help. You're central nervous system is in overdrive and oh how I understand what you are experiencing. I too was a hot mess from small fiber neuropathy, on ample meds, receiving multiple injections for migraine, neck, back and hip pain, ablations, infusions, doctor after doctor and just basically chaos in my body which caused anxiety, depression and frustration. My life box got very small between age 46 and 49 and I needed to figure it out.
I'm sorry that you have been dealt this hand. I'd like to share helpful information with you that helped educate me and turn my life around allowing for better success and management of chronic pain and symptoms.
Here is a video by Mayo Clinic's Dr. Sletten presenting on Central Sensitization Syndrome (CSS):
- https://www.youtube.com/watch?v=vJNhdnSK3WQ
Will you please watch and let me know if any of what you learn resonates and makes sense to you?
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@rwinney, thank you for your sweet and helpful message. I did watch the video and it makes a lot of sense. I've had chronic pain since 1993 and migraines since I was a child. My neck was damaged slightly when I was 14 and then in 93' from a work accident, then in 2000, I got into a car accident that really messed up both my neck and lower back, but by 2004, it was all over when I got my leg stuck in an earthquake crack one night and fell flat on my butt. Every few years I get a new MRI and it's worse. I'm on the same dose of pain medication for 16 years and I get injections in my neck and back that do help and I love with the chronic pain. The restless leg syndrome started in 2018 and I was able to manage it, through exercises, but lately it's become unbearable. Too painful. I realized the Gabapentin is also causing me chest pain. I thought it was just the Emgality injection, but the Gabapentin is causing my heart to race and my chest is hurting so bad. I take 1mg of Levothyroxine, 60 mg of methadone for pain, 40 mg of Baclofen and 75 mg of Topiramate for migraines and 2mg Klonopin for anxiety. I was taking Lexapro for depression and anxiety but I stopped that in late December. I don't know if that may have contributed to this or maybe I am low in iron. Either way this nerve pain in my legs is too painful.