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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6026)

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@archermac15

I meant to write that besides my usual medications, everything else I take such as the Prampexiole, Excedrin migraine, and Gabapentin cause me chest pain. My Neurologist said that the Gabapentin shouldn't cause chest pain either but if I want to wait until the Emgality is out of my system then I could do that. I've been taking Baclofen and Topiramate for 3-4 years for Migraines and they have helped but not that much anymore, but if I try to stop, I can't sleep. I'm on so much medication that I would like to get off of. It's so hard when you have chronic pain and can't sleep. It's not just migraines, I have damage neck and lower back and I'm also seeing a pain management Doctor but he won't increase the medication.

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Replies to "I meant to write that besides my usual medications, everything else I take such as the..."

@archermac15 My dear, my dear, my dear, Evie. I hear all of what you're saying and want to help. You're central nervous system is in overdrive and oh how I understand what you are experiencing. I too was a hot mess from small fiber neuropathy, on ample meds, receiving multiple injections for migraine, neck, back and hip pain, ablations, infusions, doctor after doctor and just basically chaos in my body which caused anxiety, depression and frustration. My life box got very small between age 46 and 49 and I needed to figure it out.

I'm sorry that you have been dealt this hand. I'd like to share helpful information with you that helped educate me and turn my life around allowing for better success and management of chronic pain and symptoms.

Here is a video by Mayo Clinic's Dr. Sletten presenting on Central Sensitization Syndrome (CSS):

- https://www.youtube.com/watch?v=vJNhdnSK3WQ

Will you please watch and let me know if any of what you learn resonates and makes sense to you?