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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 days ago | Replies (6026)

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@rwinney

@jeffrapp
Jeff, thank you for your private message. So that other members may benefit, I wanted to respond publicly to your thoughts about mindfulness training being the only thing that may help you with small fiber neuropathy symptoms. I understand your thought process given so many other things have failed.

There are many self-help tools to build upon in addition to cognitive behavioral therapy and mindfulness. CBT is a hugely successful tool, one that has helped me tremendously. I liken pain management to the expression "it takes a village to raise a child". It takes a village "of tools" to manage chronic pain and symptoms, these include:

Exercise, strengthening, cardio, daily stretching, proper nutrition, moderation, modification, managing emotions and stress, behavioral changes, distraction, scheduling, mindfulness, diaphragmatic breathing, meditation, reduction of chemicals, understanding how pain originates, stopping pain behaviors (anything you do, say, or think that reminds you of pain), humor, socialization, good sleep hygiene, perseverance, positive attitude, goal setting, positive support system, acceptance.
And now you know why I say it takes "a village".

I was given this blueprint over a 3 week period at Mayo Clinic's Pain Rehabilitation Center. It was a crash course and continues on for the rest of my life because my chronic conditions aren't going anywhere. Although I understand not everyone can attend Mayo PRC, I feel that making small changes one at a time is a great place to start for positive change. Which of the tools listed can you see yourself improving upon or adding to your self-help regiment in addition to mindfulness?

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Replies to "@jeffrapp Jeff, thank you for your private message. So that other members may benefit, I wanted..."

Thanks, Rachel, for your excellent answer.
That's a big list, and all of it is true.
I have "started" some, but not all, and it helps. I was hoping you knew some "secret" method or teacher. The usual magic bullet, that I know does not yet exist.
Back to work.
Thanks again.