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Recently diagnosed with Small Fiber Neuropathy - so many questions
Neuropathy | Last Active: Mar 8, 2022 | Replies (78)Comment receiving replies
We need educated physicians. Mine say same thing. " What does your Neurologist say".
I just put ice on top numb pain but have support hose and circulation socks on top help with cold feet. Life is crazy with this. Its exhausting.
I had hip replacement surgery in November but the SFN pain is the worst, so constant.
Hoping we find help soon. My quality of life it 62 is terrible.
Replies to "We need educated physicians. Mine say same thing. " What does your Neurologist say". I just..."
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Hello Trish. I'm just a little younger than you and am a full time student right now. I have another 1.5 years to go to get my degree. My quality of life isn't too good either, and it's a constant battle, esp right now with the demands of school. I am on campus at my school and have a commute of about 2.25 hours daily. I think this is also interfering with my pain levels, but there's no solution.
I wish people around me understood what it's like to have this disease. I hate it. Do you have any trouble with not feeling temperatures in your feet, legs or other parts of your body?
-Janine