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@pamelasc1

Hello - I wanted to follow up with my use of inhaled Tobramycin that I began using for pseudemonas in the late fall. I had usually used Levofloaxin, which always cleared it up, but I was concerned about my using it for so long and read about all the issues with neuropathy. So I tried the Toby and was hopeful as many of you said you had used it to clear up the pseudemonas. Well, it did not go so well. First, I lost my voice for about a week, then that finally cleared up, but with each day of using it, I just felt very sick. Then, I found that I was having a hard time breathing. The doctor said to use inhaled albuterol before inhaling the Toby; I did that, and it helped a bit, but I was still feeling very sick, all day long. So after 18 days of using this VERY expensive drug, I just stopped. Miraculously, the 18 days was enough to get rid of the pseudemonas and I just stopped coughing. I had another sputum sample taken a month later, and it was indeed gone. I feel lucky, as most of you had to be on the Toby for a month, then wait a month, and use the Toby for another month. I have had pseudemonas now on 4 different occasions, and I can only assume I will get it again at some point. I may go back to using the Levofloaxin in that case, as the inhaled Toby just made me feel SO sick. Best to you all, Pam in Sudbury, MA

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Replies to "Hello - I wanted to follow up with my use of inhaled Tobramycin that I began..."

I am so happy that you were able to tolerate the Toby for long enough to get rid of that horrible pseudomonas. I only lasted seven days on it before breaking out in hives and am still struggling to keep it suppressed enough to not treat. Prayers for you and your continued negative tests for pseudomonas. -Echo