Maveric09
Hi I had skin biopsies to confirm SFN. it is progressing from toes up shins. My neurologist now, insurance wouldn't pay for my prior neurologist, she doesn't know that's much about SFN. I talked to hear after my own research about the autonomic neurological effects of SFN. She agreed that it is likely i have it too which affects BP, heart, etc.
I feel alone in my pain but have a great Lyme disease doc. All day I developed the polyneuropathy from Lyme and 3 co-infections.
I was paralyzed 3× back in 2000 but recovered each time with therapy. But the pain stayed which is constant.
I am so frustrated that no one has effective treatments. I am allergic to Gabepentin and Lyrica made me gain ton of wt.
Have they tested you for Lyme? I was a Park Ranger we think when I got it.
I have asked my neurologist for another EMG/NCT as its seems spreading. But that's months away.
Few of my docs gave heard of SFN and ant understand the severe pain.