Hi Bonnie/@bonton
I also have refractory epilepsy (Temporal Lobe) and RNS has also been recommended to me.
I still see the RNS as a brain surgery, something that has to be analyzed with much care.
Have you heard of TES? It is a brain stimulator that helps to reduce seizures and does not require surgery. The company that offers that I know is called Neuroelectrics: https://www.neuroelectrics.com. They even have a TES stimulator - home system. This is something I have been considering with my doctor.
As @jakedduck1 said, surgery can have serious complications. I participate in an epilepsy group in which some members had the surgery Temporal Lobectomy. All are now seizure-free, but still dependent on medication/AED. Loss of memory is the complication most of them have since the surgery.
Here are some links with the TES solution of Neuroelectrics:
https://www.neuroelectrics.com/solutions/starstim
https://www.neuroelectrics.com/solutions/starstimhome
All the best to you and your daughter.
Santosha

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