I understand how you feel & sympathize. I consulted a rhumato & a gastro at Mayo Jacksonville & was impressed. They do work together & do try very hard to figure out what is going on. Be prepared to do a lot of blood tests to start as well as imagery such as Mri Cat scan etc. My experience both at Jacksonville & Rochester is that that they keep you until they have a diagnostic & then they suggest a course of treatment. You are treated with empathy & professionalism.. At least I was then 5 years ago. Wishing you all the best.