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← Return to ARDS Support: my story and looking to help other survivors
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ARDS Support: my story and looking to help other survivors
Intensive Care (ICU) | Last Active: Mar 21 10:37am | Replies (40)Comment receiving replies
Dear Steve,
I’m happy I found you/this support group on the www!
My husband caught covid - pneumonia - ARDS. He was placed on a vent for 7.5 weeks and was hospitalised for 4 months. His lung functionality is 38%. We are searching for ways, treatments, solutions to help his lungs heal. There is huge scarring and he is requiring 24/7 supplemental oxygen. He’s at home now and I have been his full time carer. Can you provide me with any links that I can read? Ant specialists that we can visit? Medicines? Top tips? With thanks and appreciation.
Replies to "Dear Steve, I’m happy I found you/this support group on the www! My husband caught covid..."
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Hello,
Congrats to your hubby and big kudos to you for being his full time care giver.
For me it was time; it took time to heal and move forward. I would do a search of studies of post ARDS patient recoveries. I’d try to find a support group too. Facebook has a very good ARDS page with lots of excellent support!
Do you have a pulmonologist? Once I got on some long term lung drugs my quality of life jumped dramatically. Definitely get a consult with a pulmonologist!
The best thing I can tell you is the recovery is baby steps. Lots of days of two steps forward and one step back. Hang in there and keep at it.
Steve