First of all we want to thank everyone for their positive comments and support!! We plan on using this forum as my/our diary of experiences on our journey in hopes that someday another confused and/or scared individual can see what has happened to someone else and the progression of the disease and treatment. I will try to provide updates as they become available......

Based on reading other's experience, I decided to be my wife's advocate in all matters and did not wait for information to come to me. Rather I contacted everyone we expected to hear from today, as soon as I could reach them. I called Mayo-JAX appt center at 7:01 AM, our local doctor as soon as they opened and followed through getting the contact information for each referral and contacting these offices before they had a chance to contact me. I feel certain that this helped move some things along, as compared to waiting for each office to let us know when they could see us.

We were able to contact the Mayo Appt Center this morning and completed our registration. I was informed that an actual appoint could not be made until my wife had biopsy results - so that the correct and necessary Mayo team could be assembled for the appointment.

We made contact with a local Oncologist and have our first appt this Wednesday. We expect to get a date for her biopsy during our appointment. She will also be seeing her Cardiologist (previously scheduled) on Wednesday. The Cardiologist was been informed of her cancer diagnosis and fluid around the heart sac.

We also got her PET-CT scan scheduled for this Thursday locally.

I think that we are starting to get some direction and can only hope that corrective actions continue to move along at a steady, if not rapid pace in the right direction. We will not really know anything new until late this week.