Hello there,
I am new on this site. I am looking for HELP!!! I am 54 years old and have had upper right abdominal pain now for years and years. I had many tests, scans, etc... over the years. (not to mention having seen different specialty doctors). Around 14 years ago I had my gall bladder removed due to it being "non-functional". A partial hysterectomy followed soon afterwards. Still, I've struggled over the years with occasional flareups of severe pain that nothing seems to help. It has been debilitating at times. During my latest episode of pain, my husband came home to find me screaming in pain not able to move. It was horrible. Two years ago my gastro doctor told me I have celiac disease (along with a prior diagnosis of GERD, and IBS) I also have pretty bad allergies and food intolerances, specially to plants (mostly raw) The allergist called my condition "oral allergy syndrome". I'm still trying to figure out what to do with that diagnosis. Over the past two years I've been on a gluten free diet and have done pretty well with the bloating issue. However, I am still having 2 or 3 episodes a year of severe pain that lasts for usually a month and with it comes bloating and constipation. I went to the ER last September due to severe episode of pain and constipation. Tests showed that I have Mesenteric Panniculitis. The gastro doctor and the ER doctor don't really know what to do about the diagnosis. I've been on steroids, antibiotics, and meds for abdominal cramping. Nothing works. I'm currently in pain and taking Ibuprofen, etc... for the pain. I'm getting so very tired of this stuff happening. I am a very active mom who likes to build, hike, hunt for arrow heads, etc. (also ADHD, ofcourse) My daughter and I have a camping trip next weekend where we will be hiking in the mountains. I hope to God I'm not feeling like I do now. I describe the usual pain as what it feels like to go swimming right after eating a huge meal. You know that hard stabbing cramping feeling? That is the constant pain i have and then certain movements trigger the feeling of being stabbed in the gut. I tend to breathe shallow because it hurts to breathe in deeply. I looked up info about Mesenteric Panniculitis and realized how rare it is. I hope to connect with anybody who can give me advice or reassurance. I'd really appreciate any feedback. Thanks! Jessica McRee Grabert