@kelmari, @franksgirl210, @mamafluh, @hello123yes, @doorman, and recent members I may have missed.
Hello everyone. I cant imagine the frustration you have between doctors discrediting what you feel and describe, the variety of skeptical diagnoses, and not having a plan to go forward with. Collectively, muscle twitching, vibrations, migraines, tremors, electrical sensations, nerve inflammation, etc...ultimately leads to, can create, or add to, extreme stress, anxiety and depression. I have been there and 100% understand the confusing, draining journey. Your battling against an upregulation of your Central Nervous System (CNS). The causes behind all of this can vary person to person, but one thing unites and that is how do you manage and try to quelle your symptoms?
It breaks my heart to read your stories. I do feel your pain, fear and sense of confusion. I know everyone is on their own journey, but I wanted to throw out to you all a program that treats a multitude of symptoms and diagnoses like you have, and helps. I found out about Central Sensitization Syndrome (CSS) through Dr. Sletten's (Mayo Clinic) video. I have posted this video on Connect but am never sure who may not have seen it. It helped me understand my nerve dysfunction and variety of odd symptoms due to CNS upregulation, and offered a rehab program to teach me how to calm my system both physically and mentally, and manage my symptoms for a better quality of life. Here is the video:
- https://www.youtube.com/watch?v=vJNhdnSK3WQ
Some of you are already working with Mayo doctors or post-COVID programs. It never hurts to be loaded with more knowledge and info to advocate for yourselves. Know there is an option out there for support and assistance. Sending my best wishes, encouragement and positivity your way!
Do you mind letting me know your thoughts and what your next steps might look like? How do you see a better path forward for yourselves in managing your symptoms?
Thank you so much for posting the link to the video of this neurologist from Mayo and Jacksonville. I go to Mayo on May 9th for my symptoms that have been debilitating for 2.5 years now yet no neurologist here in Tampa Florida area or in Augusta Georgia area as well as endocrinologist and cardiologist and primary care configure anything out as to why I have all these debilitating symptoms. Some symptoms have come and gone some return some have never went away and it seems like it's just gotten worse. This is a very informative educational video and I think a lot of neurologists across America that try to shrug off their patients symptoms as anxiety and depression and want to immediately put you on antidepressants they all need to watch this video. I've been strung along for 2.5 years now by far too many different so-called specialist that just shrug off these symptoms and want to blame it on and anxiety and for 2.5 years now I've suffered to hell and back and back to hell again. Shame on all the other neurologists and other specialist that want to give a quick diagnosis of stress and anxiety for people that have symptoms like mine and others I'm reading on this Mayo Clinic blog