← Return to PMR, prednisone and Poor Sleep or Insomnia

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@johnbishop

Welcome @jabrown0407, Thank you for sharing your experience with what helps when you have a problem getting to sleep. Do you mind sharing what you were searching for when you found Connect?

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Replies to "Welcome @jabrown0407, Thank you for sharing your experience with what helps when you have a problem..."

No problem - In April of 2019 I had an adverse reaction to my second Shringrix vaccination, immediately I had a cascade of health issues which went undiagnosed for close to a year - you guessed it - PMR. I am super sensitive to pharmaceuticals so taking steroids long term is off the table - actually taking them short term is undesirable. I could not embrace the PMR diagnosis because my muscle/joint pain was inconsistent with descriptions found online. Fast forward to today I finally decided to do a deep dive into PMR and became frustrated with the lack of a single medical book covering to topic from A to Z. What I found was pockets of research papers, during my online search efforts I stumbled across this site. I joined recently.
I have had a long list of problems including heart issues for the first time in my life - I'm 77. Orthopedic problems including impingement issues and bursitis, blood issues necessitating a bone marrow test, infectious disease issues, dermatology problems of a foot fungus (never had athletes' foot when a teenager and showering in gang showers), plus other problems way too numerous to mention. I have struggled with symptoms, pain and medical mysteries. I have reluctantly accepted PMR as the diagnosis, but never was the complex of other issues I had mentioned ever listed as possible companion issues. This I believe is selling the problem short. PMR is systemic and not just muscles and joints. Even Mayo Clinic's list of symptoms does not give a nod to the other possible problems like anemia, edema, heart issues, etc - this is what caused me to question the diagnosis in the first place.
Long answer for a simple request. For most of my life I have had to seek OTC and alternate solutions for things others can solve easily with an Rx. I learned the Benadryl trick decades ago while traveling on business. I use pediatric strength as a sleep aide.
Hope this help you understand me just a little better. Thanks for reaching out.