Hi Colleen,
I was fortunate (ironically) to have digestive issues as a young adult which led to my 1st colonoscopy. For a few years, I was not considered high risk. Interestingly, when I was in my 40s, my gastro at the time began blaming me for the polyps (my interpretation) and another doctor suggested a specific gastro. He looked at my records and said that I have something genetic and wondered why my previous doctor put me on a 3 yr recall and scheduled a colonoscopy. That year, he removed 17 polyps. I thank my lucky stars. We assumed that I had AFAP and I have an annual colonoscopy and an upper every few years. Last year 23&me added the MUTYH gene to their annual membership. (I wasn't aware of this gene, but had upgraded my membership for other reasons.) Once I saw the results, I wanted to confirm with a clinical lab (not direct to consumer) and my PCP ordered the test through Quest Oncology. It confirmed the 23&me result. I'm currently facing some tortuous colon issues/scarring/divuticulosis preventing me from having a completed colonoscopy. I fear that the time is approaching for removal. So, that's where I am today. I found your site as I'm trying to figure out next steps as a virtual colonoscopy isn't really going to solve the problems. I understand that it's very rare to have both variants (MAP). I am so fortunate to have had the surveillance that I had throughout my life and have made it this far (65 yrs old this year) without surgery. Thanks for your question. 🙂